Parents may either assume caregiving responsibilities from the moment of birth, or their children may come to need care later in life due to an accident or illness.

Parents of a child with a disability, a severe multiple disability, or a chronic illness often experience a wide range of emotions. Along with the joy of having a child of one’s own come uncertainty, worry, and a host of organizational and bureaucratic requirements. It is not uncommon for numerous tests to be necessary before a definitive diagnosis can be made. At the same time, the question arises of how one’s own life and family plans can be readjusted to meet the child’s needs.

In the guide “My Child Has a Disability—Here’s What Help Is Available,” the Federal Association for People with Physical and Multiple Disabilities (Bundesverband für körper- und mehrfachbehinderte Menschen e.V.) provides comprehensive information, including versions in Turkish and Arabic. The Federal Association ” wir pflegen e.V.” is an advocacy group and self-help organization for family caregivers; you can find more information here.

There are numerous support services available for children with disabilities and parents who are responsible for their care. However, these are enshrined in various legal provisions, which makes it difficult to navigate the system. The information in this section provides an initial overview. However, they cannot replace personalized counseling that takes your specific family situation into account.